Amyotrophic Lateral Sclerosis Case Paper

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Steve, 51, was diagnosed with Amyotrophic Lateral Sclerosis in May of 2009. In April 2009, Steve visited his primary care physician, Dr. Smith, at our Lady of the Lake. Steve noticed a general pattern of weakness. When playing baseball with his children, he is unable to hold on to the baseball bat as tightly as needed. In addition, Steve stated he had difficulty with eating and hoarseness. Steve was diagnosed with ALS by his neurologist the following month.
Steve breathes via ventilator and eats via PEG tube. Steve is mobile with assistance with his wheelchair. His occupational and speech therapist visit him twice a week. Steve currently uses a high-tech eye gaze device that is mounted to his bedroom wall to communicate. The device uses text-to-speech.
Steve lives with his wife, Shannon, and three children; Abigail 19, Benjamin 18, and Carson 16. Steve is an active member of the community and collects admission tickets for his two son’s baseball games. In addition, Steve is an avid Boston Red Socks Fan. B. Needs Assessment Description I. What prompts the need for the materials you are developing? Steve is an avid Boston Red Socks. Steve attended most games over the last thirty years. At least once a week during the regular season, Steve attends these games with his best friend Dave. Steve is unable to take the high-tech eye gaze machine that is mounted in his bedroom. Steve would like to have a portable device that would allow him to communicate with Dave. II. What are the communication needs of this person? Steve uses a high-tech eye gaze machine at home. However, Steve needs something that would allow him to communicate when he goes out into the community. Steve attends Wrigley Field weekly to cheer on his favorite baseball team. Steve enjoys greeting the regulars when entering Wrigley Field. He also orders his regular meal of a hot dog with mustard, relish, and onions. In addition, Steve would like to communicate with Dave about the game and life. Steve would also like to communicate his wants and emotions. C. Explain how the materials have been constructed to match the client
…show more content…
Steve will interact with Dave at Wrigley Field during baseball games in two out of three opportunities
b. Steve will interact with Dave at Wrigley Field during baseball games in three out of five opportunities.
c. Steve will interact with Dave at Wrigley Field during baseball games in five out of eight opportunities.
i. Steve will indicate when he needs use the restroom with the gestures and the low-tech eye gaze board. ii. Steve will order his own food and beverage during the game with gestures and the low-tech eye gaze board. iii. Steve will indicate when he is in pain, happy, or needs assistance
2. Steve will engage up to three conversational turns including conversational starters with friends using his low-tech eye gaze board.
a. Steve will engage up to one conversational turn with friends using his low-tech eye gaze board.
b. Steve will engage up to two conversational turns with friends using his low-tech eye gaze board.
i. Steve will greet his “regulars” while arriving at the game. ii. Steve will make appropriate comments during the game with Dave.
1. “Did you see that hit!”
3. Dave will be trained to properly use the eye-gaze

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