The United Leukodystrophy Foundation would be a good contact point for obtaining participants for the study, singling out the parents of patients most likely to die within the first decade of life. These patients are most likely to have severely impairing disabilities that would cause the greatest quality of life decrease for their caregivers. It is imperative that research is done to improve the quality of life for these patients and families by decreasing the effect that stress has on these
The United Leukodystrophy Foundation would be a good contact point for obtaining participants for the study, singling out the parents of patients most likely to die within the first decade of life. These patients are most likely to have severely impairing disabilities that would cause the greatest quality of life decrease for their caregivers. It is imperative that research is done to improve the quality of life for these patients and families by decreasing the effect that stress has on these